Identity Lost and Found After Infertility and Failed IVF

identity

Identity — and the loss of it — loomed large 10 years ago as I sat staring at my computer. I didn’t know who I was any more.

Scared. Untethered. Unsure of what awaited me.

I stared at a blinking cursor. Heart broken. Filled with longing for what might have been. I nursed an overwhelming grief (the full extent of which would come much, much later.)

Steady rain beat down on the roof February 3, 2007. It was as if the heavens were crying with me.

I searched the Internet with phrases and questions such as:

“why doesn’t society help infertiles?”
“what I wish fertiles knew about infertility”
“how to keep living after infertility”

What I discovered online was a burgeoning community of women wrestling with many of the same questions in a new form of expression called the blogosphere. I looked up ‘how to start a blog’ and began writing.

Now 10 years later, February 3, 2017, with the benefit of your generous hearts, encouragement and willingness to help me rediscover my identity, I am whole again.

Identity Regained

You could say finding the German film, Phoenix, this past month was Kismet.  It helped me fully realize just how much of myself, my identity, I once lost and rediscovered.

After the film I recorded notes from interviews with the director and lead actors. I would never presume to know the horror and betrayals that occurred during World War II, but the parallels around trauma and lost identity held me spellbound.

Phoenix opens with a face profiled in darkness. It is the face of a woman driving a bandaged and bloodied passenger back to Berlin. Her face has been badly damaged. Here are the words of Nina Hoss, who describes how she played the lead character, Nelly Lenz:

“Phoenix is a movie about a woman whose fire has gone out. She is trying to keep the remaining embers burning. Someone has to blow on those embers to revive her. She has been through the worst experience you can possibly imagine. It’s ingrained in her. She is looking for her life back.

“As an actress, I am concentrated with [her] trauma and coping with trauma…It also meant that the experience had to have an effect on her body. If I wanted to tell the story of her journey…of someone reclaiming herself…taking on a new self, she had to have no identity at all. She was dehumanized and that’s how she comes back. When you’re driven by fear — when you go out into the world and your body closes in on itself, you don’t put yourself out there and say, ‘here I am! Look at me.’ It’s more like ‘don’t look at me, because I don’t know if you’ll harm me or not. I can’t face up to another person. I lack the inner strength to stand my ground.’ That was my starting point.”

That was also my starting point, and the starting point for many women I’ve met and come to know. Those who came away traumatized by failed fertility interventions, surgeries and IVF.

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A Rising Phoenix

Nina captured poignantly what many of us have had to reconcile, in the early days of coping with trauma, as our identity and dreams of what might have been slip away:

“Having no face [only bandaged]. As a woman and as an actress, I thought it was great that this woman didn’t have to define herself by her face. She could simply observe. What’s the world like now? Where am I? What’s happened? What’s going to happen? Her body reflects that. She’s like a faceless zombie walking around in the world, rediscovering the world like a child — or an alien. She doesn’t know her way around any more.”

I nodded knowingly at the television screen and hurriedly wrote more notes.

Nina added, “I had to withdraw into my shell, to reach the character’s sense of isolation and her incredibly complicated state of mind — to somehow simply this complicated mental state and hold on to it.”

I sighed. I also wondered if others who had watched me some 10-plus years stumble around locked in my incredibly complicated state of mind could begin to understand my sense of isolation.

About one scene, Nina described her inspiration to portray the character’s wobbly form during a familiar encounter.

“It’s like in Proust when you smell or taste something, a memory slams into your body like a sledge hammer. That’s why she totters to the side.”

Regaining my footing took much longer than I ever anticipated. Movies, books and, of course, blog posts have illuminated my world. (I highly recommend this film and the accompanying interviews where you will hear many more gems about trauma recovery.)

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From where I sit today life feels both familiar and dramatically unfamiliar. The path in the past decade has had plenty of thorny patches. I’ve done my fair share of bumping up against barriers.  The bruises and scars, however, are testaments to years of work — trial and error. I confronted not only my own ignorance but the ignorance of others.

On a New Path

Ultimately, kindness and compassion helped me to grieve openly and to overcome years of suffering.

I am still me, albeit stronger, more self-assured and certainly wiser — in large part due to you, my dear blog readers.

And the next 10 years? A new project. Stay tuned.

You can find this essay as well on Huffington Post: Whole Again After Multiple Failed IVF Cycles

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10 thoughts on “Identity Lost and Found After Infertility and Failed IVF

  1. dear Pamela,
    it was lovely to re-read your very first blog post!
    Wishing you and your DH all the best for the future.

  2. Pamela, CONGRATULATIONS on this amazing milestone!! I can’t imagine what the last 10 years would have been like if I hadn’t found your blog (a few months after you’d started writing, I think…!). Thank you, thank you, thank you for your friendship, your leadership, your example and your wisdom. I can’t wait to hear about your new project!

  3. Mel

    Congratulations! A huge accomplishment.

  4. Congratulations on 10 years! That is truly a milestone. I read your first post and then reread this one and it’s clear that you’re more than a survivor; you’re a builder, an advocate and much needed voice. In short, a Phoenix

    Thank you for the heads-up on the movie. It’s now in my que.

  5. BnB

    I am so thankful for you and for your writing! Can’t wait to hear what’s next for you!

  6. Dear Pamela,
    Congratulations on your ten year blogoversary and thank you for the amazing and wonderful work you have done during all that time! Reading from you and other bloggers has made my own (and I am sure also many other women’s) journey so much more bearable.
    Best wishes from snowy Switzerland,
    Elaine

  7. Brava on ten years of exquisitely honest and important writing, and of the mentor role you’ve played for so many women coming through after you. A new project? That sounds exciting.

    This post is, I think, one of my absolute favourites. So much of what you’ve written – or what you recognised in Nina’s comments about her character and experiencing trauma – is exactly what I felt and experienced. I’m not sure I’ve ever seen it captured quite this way. 13 or so years later, thank you.

  8. Congratulations Pamela on your 10 year blogoversary. And for the wonderful work you’ve done and continue to do.
    Thank you also for leading the way; giving those of us following in your footsteps permission to be a bit braver with our writing and our lives.
    Lesley x

  9. Thank you so much for all you’ve done for our community. I say it too often but “Silent Sorority” really helped me pull through in my dark days.

    1. Pamela Tsigdinos

      Many thanks from the bottom of my heart. It never gets old to hear that Silent Sorority has had an impact. The feedback and responses to it continue to fuel my advocacy and drive for truth, transparency, compassion and a positive change in cultural understanding. I’m honored to be fighting the good fight with great company such as yourself and the other courageous and outspoken women who regularly visit and comment here. May the next generation of women benefit from our work in openly laying out the challenges we’ve overcome. xo

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